Being Believed Shouldn’t Be the Prize: A Lived Experience of Women’s Mental Health Inside the Medical System
Tracks
Ballroom 1
Ballroom 2
Tamborine Gallery
| Monday, August 31, 2026 |
| 3:05 PM - 3:35 PM |
| JW Grand Ballroom |
Overview
Rosie Luik, Author, Speaker and Lived-Experience Advocate
Three Key Learnings
1. Repeated medical invalidation and misdiagnosis can directly escalate physical illness and psychological harm, reinforcing the need for clinicians to actively listen, investigate, and believe women early.
2. When care pathways fail, women step into the role of coordinator, advocate, and decision-maker for their own (and their family’s) health—highlighting a critical systems gap, not a personal strength story.
3. Embedding lived experience into care design and delivery is essential to achieving truly integrated, gender-responsive mental health systems, not optional storytelling .
Speaker
Rosie Luik
Author, Speaker and Lived-Experience Advocate
Being Believed Shouldn’t Be the Prize: A Lived Experience of Women’s Mental Health Inside the Medical System
Abstract
I’m Rosie Luik — a Brisbane-based author, speaker and lived-experience advocate — and my keynote is about the mental health cost of having to fight to be believed.
My story sits at the intersection of women’s bodies, motherhood, and systems that don’t always listen. I was Queensland’s first legal altruistic surrogate to twins. I’ve navigated 6 pregnancies, gynecological and maternity care, and complications that escalated into sepsis, infection, peritonitis and surgery. I've lived with endometriosis, adhesions and the long tail of repeated procedures. In my twenties I had a hysterectomy. I also know what it’s like to keep showing up as “capable” while living with chronic pain, anxiety, and the daily logistics of raising a family and a business. We call it ‘controlled chaos’ on purpose.
But the hardest part wasn’t only what happened to my body. It was what happened to my mind when I was dismissed, misdiagnosed and unheard inside the medical system. When you’re repeatedly minimised, you start to doubt your own perception. You rehearse your pain so it sounds “credible”. You soften the truth so you don’t get labelled difficult. You walk out with shame instead of support. That survival strategy can become anxiety, hypervigilance, and isolation — and it can reverberate through families.
This keynote is also about rebuilding self-trust. The psychological toll of fighting to be believed has shaped my commitment to women trusting their bodies and intuition — and to clinicians, service designers, policymakers and lived‑experience leaders treating that intuition as information, not inconvenience.
Today, I use that hard-earned insight to advocate fiercely for my daughters in the same system, because medical dismissal doesn’t stop with one woman. I’ll share the human reality behind the clinical notes, and the practical actions that helped: curiosity, validation, continuity, and care that makes women’s mental health inseparable from women’s health.
My story sits at the intersection of women’s bodies, motherhood, and systems that don’t always listen. I was Queensland’s first legal altruistic surrogate to twins. I’ve navigated 6 pregnancies, gynecological and maternity care, and complications that escalated into sepsis, infection, peritonitis and surgery. I've lived with endometriosis, adhesions and the long tail of repeated procedures. In my twenties I had a hysterectomy. I also know what it’s like to keep showing up as “capable” while living with chronic pain, anxiety, and the daily logistics of raising a family and a business. We call it ‘controlled chaos’ on purpose.
But the hardest part wasn’t only what happened to my body. It was what happened to my mind when I was dismissed, misdiagnosed and unheard inside the medical system. When you’re repeatedly minimised, you start to doubt your own perception. You rehearse your pain so it sounds “credible”. You soften the truth so you don’t get labelled difficult. You walk out with shame instead of support. That survival strategy can become anxiety, hypervigilance, and isolation — and it can reverberate through families.
This keynote is also about rebuilding self-trust. The psychological toll of fighting to be believed has shaped my commitment to women trusting their bodies and intuition — and to clinicians, service designers, policymakers and lived‑experience leaders treating that intuition as information, not inconvenience.
Today, I use that hard-earned insight to advocate fiercely for my daughters in the same system, because medical dismissal doesn’t stop with one woman. I’ll share the human reality behind the clinical notes, and the practical actions that helped: curiosity, validation, continuity, and care that makes women’s mental health inseparable from women’s health.
Biography
Rosie Luik is a Brisbane-based author, speaker and lived-experience advocate whose story highlights the mental health impact of being dismissed, misdiagnosed and unheard within the medical system. As Queensland’s first legal altruistic surrogate to twins, Rosie has navigated complex health journeys that required sustained self-advocacy over many years. The psychological toll of fighting to be believed — and to secure appropriate care — has shaped her commitment to women trusting their bodies and intuition. Today, she draws on that hard-earned insight to advocate fiercely for her daughters within the health system, bringing a powerful perspective on how medical dismissal reverberates across families.