Overlooked Need, Lived Experience Solutions: MH Families and Carer in Rural and Remote Communities
Tracks
Room - Stanley C
Friday, November 10, 2023 |
11:45 AM - 12:15 PM |
Overview
Amaya Alvarez, Tandem Carers Inc
Speaker
Ms Amaya Alvarez
Senior Family & Carer Researcher
Tandem Carers Inc
Overlooked Need, Lived Experience Solutions: MH Families and Carer in Rural and Remote Communities
Abstract
Data from Mental Health Australia (MHA) and Carers Australia (CA) shows that, amidst the carer population, mental health families and carers have some of the poorest mental health and wellbeing outcomes of all Australians.
Reform consultations for the new Family and Carer Led Centers (FCLC) in Victoria of metro, regional, rural and remote carers, conducted by lived experience researchers and advisors from Tandem Carers, (Victoria’s Peak Body supporting mental health families and carers), found that the risk of current and future mental health distress identified in the data, is amplified by the spatial determinants of health.
Some of the exacerbated risks identified include:
• Isolation and loneliness
• Stigma
• Financial and housing precarity
• relationship breakdown
• Poor physical and mental health
• Trauma
• Suicidality
Building on the feedback from the FCLC work the presentation will show how local folks are best placed, to identify what is urgently needed to improve the health and wellbeing of families and carers in rural communities. We will also suggest models of engagement to make this happen.
Some of the carer identified supports are:
• Local, in person, lived experience facilitated support groups.
• Mobile supports & outreach for families.
• Information on rights and family and relational supports.
• System navigators.
• Accessible health and wellbeing support (not the directive to ‘self-care’).
In conclusion, we argue for the meaningful inclusion of families and carers in mental health engagement, service design and supports in rural and remote communities, that recognises the extent of their needs. By drawing on the richness of their lived experience, we advocate for the co-creation of ‘on the ground solutions’. These solutions should occur in true collaboration between community services and government, so that they are useful and sustainable for the family and carers they aspire to serve.
Reform consultations for the new Family and Carer Led Centers (FCLC) in Victoria of metro, regional, rural and remote carers, conducted by lived experience researchers and advisors from Tandem Carers, (Victoria’s Peak Body supporting mental health families and carers), found that the risk of current and future mental health distress identified in the data, is amplified by the spatial determinants of health.
Some of the exacerbated risks identified include:
• Isolation and loneliness
• Stigma
• Financial and housing precarity
• relationship breakdown
• Poor physical and mental health
• Trauma
• Suicidality
Building on the feedback from the FCLC work the presentation will show how local folks are best placed, to identify what is urgently needed to improve the health and wellbeing of families and carers in rural communities. We will also suggest models of engagement to make this happen.
Some of the carer identified supports are:
• Local, in person, lived experience facilitated support groups.
• Mobile supports & outreach for families.
• Information on rights and family and relational supports.
• System navigators.
• Accessible health and wellbeing support (not the directive to ‘self-care’).
In conclusion, we argue for the meaningful inclusion of families and carers in mental health engagement, service design and supports in rural and remote communities, that recognises the extent of their needs. By drawing on the richness of their lived experience, we advocate for the co-creation of ‘on the ground solutions’. These solutions should occur in true collaboration between community services and government, so that they are useful and sustainable for the family and carers they aspire to serve.
Biography
Amaya Alvarez is a Senior Family Carer Researcher at Tandem Carers. She brings her lived experience supporting a family members in MH & AOD. She also works at Mental Health Carers Australia alongside the CEO. gaining insight into issues of concern for families and carers across Australia.
She is completing a PhD that examines MH carer experience of the NDIS – including the impact on families in ‘thin markets’ and how marketisation relies on the systemic unpaid work of families and carers.
Amaya is a founding member of FaCRAN the newly formed Family and Carer Research and Advocacy network.